Lowe Syndrome and Me: a co-creation video series connecting patients, caregivers and researchers

A publication from Teresa Haugen, Lowe Syndrome Association Board Member, Jenny Gallop and Hélène Doerflinger, Public Engagement Manager at the Gurdon Institute about a collaborative patient and public involvement project, Lowe Syndrome and Me. Researchers from the Gallop Lab and caregivers from the Lowe Syndrome Association (United States) collaborated to produce a series of videos from the perspectives of patients and their families, advocacy group members and researchers.